Needless to say I am shocked and awed that we're there. She will be 18 in lees than 2 months and it blurred by, in a millisecond, the proverbial blink. I get teary all the time now just thinking about how fast it's gone and how soon she'll be a grown up and doing grown up things. Teryn played on a traveling basketball team last year, just before she turned 17 and I was a terrible wreck over it. My baby...off to see the world. They made it as far as New Orleans. I held my breath the whole time.
I remember the little imp that started talking full on sentences at 9 months old. She was such an adolescent even at the tender age of 2 when she would walk up to people and say stuff like "hey did you know my mom has a really wrinkly butt." I also remember her struggling to read in the 4th grade and all the many hours in tutoring, vision therapy, and doctor's offices we spent trying to assure ourselves that our child was more than average.
I remember racing to the E.R. one Thanksgiving night thinking she was choking and just knowing that she was dying in my arms. She was so lifeless and her lips were tinged an eerie blue. I'll never forget being made to stand outside while she got her X-rays because I was too hysterical and they needed to be able to work on her. There was a feeling of relief out in that lonesome hallway and somehow I knew we would get a second chance.
Teryn was fine; her brain was not. She was diagnosed with Benign Rolandic Epilepsy about 6 months later. She took meds and had several more scary seizures where she would go limp and convulse, then writhe as if in pain and pant until she would lose control of all of her bodily functions. She would then "awake" and start freaking out. We would hold her and calm her down and clean her up. It was surreal, beyond scary and it took a toll on us all.
The big seizures happened in the night; the smaller ones were happening all day and we didn't realize it until she came home with an F in reading. Turns out that kids with BRE can have break-through seizures that are so mild, they mimic symptoms of ADD. We were told by the school officials to put her on ritalin and a tranquilizer to get her to sleep. They knew about her seizures and when I mentioned that she might be having petit mals during the day and that her sleep was disrupted by the grand mals, they reiterrated the need for meds to "control and contain her behaviors." We were also told that the school didn't remediate kids after 3rd grade and to just expect her to be on meds forever. The principal said, "She'll just be average at best."
I was pissed. How dare they say those things about MY child. She was sitting at 4 months, walking and running at 9 months, speaking in paragraphs at 1 year. Everyone always complimented us on how smart she was and how agile and athletic. "When she grows up, she'll be a rocket scientist basketball star," they all proclaimed. How could someone say that she would never be more than a fry cook or a dishwasher? She was not average and I would prove it!
We took her back to the pediatric neurologist and he confirmed our suspicions on the petit mals. Teryn's meds were changed and her teacher noticed an immediate change in her awareness. Where she once seemed like she was daydreaming or unable to focus, she was now more alert, attentive and interactive. We also got her into 3 hours of tutoring a week and 3 hours of vision therapy to help correct tracking and visual processing deficits that were a side effect of the seizures.